Welcome to the New Zealand LAM Charitable Trust – Last Updated 28 November 2022

If you can’t breathe, nothing else matters.

The NZ LAM Trust is registered with the NZ Charities Commission: CC20304.

The Trust is a not for profit rare lung disease research and patient support group for New Zealand women diagnosed and suffering with Lymphangioleiomyomatosis.

Established in Auckland in 1999, the New Zealand LAM Trust is one of a number of patient and family organisations around the world working alongside scientists, clinicians and researchers, raising awareness about the disease Lymphangioleiomyomatosis and helping raise funds to support research into its cause and ultimately its cure.

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What is LAM?

LAM is a rare, progressive lung condition affecting women generally between the ages of 25 to 45.

LAM, first described in the medical literature in the 1920’s has recently been described as a slow moving metastatic neoplasm. Symptons include breathelessness, chest pain, cough, and lung collapse.

Our Challenge

• To help to transform the vision of a future without LAM into a reality
• To intensify our efforts to raise funds for scientific research
• To educate general practitioners to recognise early symptoms of LAM
• To ensure that women get a timely and correct diagnosis
• To identify and provide support for every LAM patient in New Zealand.

Our Objectives

• To provide support for women diagnosed with LAM and their families
• To become the source of information for women affected with LAM
• To publish educational materials on LAM for all interested people
• To raise awareness of LAM, to improve early detection and diagnosis
• To maintain a database of persons throughout the country who have LAM
• To foster and fund research aimed at finding a cause of and cure for LAM and ultimately, preventative measures
• To sponsor conferences, workshops and scientific meetings related to LAM
• To raise money to support the goals.

With support for New Zealand women suffering from LAM and fundraising for research as the central focus, the New Zealand LAM Trust is committed to the above challenges.

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LAM for GPs

» Click here for the full series

» Click here for patients and families webisodes.

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Donate Online

Thank you to those supporters who have donated towards our ongoing research programmes by using the online donation system on our website.

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Contact Us

LAM Patient Liaison | Jessica van Slooten – Auckland | 021 895 246 | jessica@decisionpoint.nz